SB4185 Extends Rare Disease Commission to 2032
Summary
Illinois Governor signed SB4185 into law, extending the Rare Disease Commission Act sunset date from January 1, 2027 to January 1, 2032. The bill also specifies that administrative support from the Department of Public Health includes printing services for the Commission's annual report distribution. Effective immediately upon signing.
What changed
Illinois SB4185 amends the Rare Disease Commission Act to extend its sunset date from January 1, 2027 to January 1, 2032, effectively maintaining the Commission for an additional five years. The legislation also clarifies that administrative and support services from the Department of Public Health include printing services for distribution of the Commission's annual report.\n\nAffected parties, including state agencies, healthcare providers, and rare disease advocacy groups engaged with the Commission, can continue their current participation and prepare for ongoing Commission activities through 2032. No new compliance obligations are created by this amendment.
What to do next
- Monitor Rare Disease Commission activities and reports
- Continue participation in Commission initiatives through 2032
Archived snapshot
Apr 11, 2026GovPing captured this document from the original source. If the source has since changed or been removed, this is the text as it existed at that time.
ChangeBridge / Illinois / SB4185 Signed by Governor SB4185 Senate Bill Signed by Governor 2026-04-10
RARE DISEASE COMMISSION
Amends the Rare Disease Commission Act. Changes the sunset date of the Act from January 1, 2027 to January 1, 2032. In provisions regarding administrative support, adds that the administrative and other support to the Rare Disease Commission provided by the Department of Public Health includes printing services related to the distribution of the Commission's annual report. Effective immediately.
Bill Details
State Illinois
Session 104th General Assembly
Chamber Senate
Committee Assignments
Official Source www.ilga.gov/Legislation/BillStatus?DocNum...
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Sponsors
Linda Holmes (Sen - D)
Action History
2026-04-10 S Referred to Assignments 2026-04-10 S First Reading 2026-04-10 S Filed with Secretary by Sen. Linda Holmes
Committee Referrals
2026-04-10 S Assignments
Bill Text Versions
2026-04-10 Introduced Legislative data powered by LegiScan (CC BY 4.0)
Named provisions
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