Rare Disease Advisory Council Meeting, Indianapolis, April 17th
Summary
The Indiana Department of Health announced a public meeting of the Rare Disease Advisory Council scheduled for Friday, April 17, 2026. The meeting will take place in the Yoho Executive Board Room at 2 N. Meridian St., Indianapolis, IN 46204, with livestream access available. The advisory council includes members appointed by the Governor representing physicians, nurses, pharmacists, pharmaceutical representatives, advocacy organizations, research institutes, and ex-officio members from Indiana Medicaid and the DOI Commissioner.
What changed
The Indiana Department of Health posted notice of a public meeting of the Rare Disease Advisory Council scheduled for April 17, 2026 in Indianapolis. The meeting will be held in the Yoho Executive Board Room and livestreamed. Council membership includes healthcare professionals, advocacy representatives, and ex-officio government officials appointed by the Governor.
Affected parties, including healthcare providers, patient advocacy organizations, and individuals interested in rare disease policy, may attend in person or via livestream. This meeting is informational and does not create immediate compliance obligations. Stakeholders should monitor for any resulting policy recommendations or council reports that may signal future regulatory direction.
What to do next
- Monitor for meeting agenda and livestream link
Archived snapshot
Apr 15, 2026GovPing captured this document from the original source. If the source has since changed or been removed, this is the text as it existed at that time.
Rare Disease Advisory Council - 04/17/2026
By Department of Health Tuesday, April 14, 2026 4:00pm EDT
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Indiana Department of Health, Robert O. Yoho Executive Board Room View map Add to calendar 2 N. Meridian St., Indianapolis, IN 46204
View map Add to calendar Notice of Public Meeting
The Rare Disease Advisory Council
will meet
Friday, April 17, 2026
in the
Yoho Executive Board Room
Indiana Department of Health
2 N.Meridian St.
Indianapolis, IN 46204
Member Name - Title - Appointing Authority - Appointment Date - Expiration Date
Wad Clapp, MD - Chair/Physician - Governor - 10/02/25 - 06/30/29
Lucy Paskus, RN - Nurse - Governor - 2023 - 09/30/2026
Douglas Cipkala, MD - Physician - Governor - 2023 - 2027
Michael Busk, MD - Physician - Governor - 2023 - 09/30/26
Tara Jellison, PharmD - Pharmacist - Governor - 2023 - 09/30/26
Patricia Smith - Pharmaceutical Representative - Governor - 10/21/2025 - 06/30/2027
Robyn Spoon - Advocacy Organization Representative - Governor - 10/02/2025 - 06/30/2029
Barbara Calhoun - Research Institute Representative - Governor - 11/05/2025 - 09/30/2026
Holly W. LambertI - DOI Commissioner - Governor - Ex-officio - Ex-officio
Audrey Frenzel - Indiana Medicaid Director - Governor - Ex-officio - Ex-officio
Carl Ellison - President and CEO, Indiana Minority Health Coalition - Governor - Ex-officio - Ex-officio
Event Details
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Public Notices Calendar
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