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Survey Findings on Barriers to Direct Care Information Sharing

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Summary

The National Data Guardian (NDG) published a survey report on barriers to health and care professionals sharing information to support direct care. Commissioned in late 2019, the online survey aimed to understand perceived obstacles to appropriate information sharing. The report includes four recommendations for educational initiatives to improve direct care information sharing practices.

What changed

The National Data Guardian published survey findings on barriers to information sharing for direct care. The report presents findings from a 2019 online survey of health and care professionals, identifying perceived obstacles to appropriately sharing patient information. The NDG Panel has also published an accompanying blog post discussing the findings and next steps.

Healthcare organisations should review the survey findings to understand barriers staff face when sharing information for direct care purposes. While the report does not create binding compliance obligations, organisations may consider the four recommendations when developing training initiatives and improving data sharing practices. The NDG notes it lacks resources to develop a direct care decision support tool, which was removed in March 2025.

What to do next

  1. Monitor NDG publications for updates on information sharing guidance
  2. Review current practices for sharing patient information to support direct care
  3. Consider NDG recommendations when developing staff training on data sharing

Archived snapshot

Apr 15, 2026

GovPing captured this document from the original source. If the source has since changed or been removed, this is the text as it existed at that time.

Independent report

NDG report on barriers to information sharing to support direct care

This report details the findings of a survey commissioned by the National Data Guardian on the barriers to information sharing to support direct care.

From: National Data Guardian Published 4 August 2020 Last updated 11 March 2025
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Documents

Information sharing to support direct care survey report

PDF, 1.22 MB, 33 pages


Details

Introduction

In late 2019, the National Data Guardian commissioned an online survey to help her better understand the perceived barriers to health and care professionals sharing information to support direct care, also called individual care. Its purpose was to learn what educational initiatives she might usefully encourage to support appropriate information sharing.

This report details the findings from that survey, including a set of four recommendations.

NDG Panel member, Dr Alan Hassey has published an accompanying blog post, in which he discusses the survey’s findings, recommendations and next steps.

Updates to this page

Published 4 August 2020 Last updated 11 March 2025 show all updates
1.
11 March 2025

The draft direct care decision support tool has been removed because the NDG lacks the resources to develop it further or maintain it.
2.
4 August 2020

First published.

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Last updated

Classification

Agency
NDG
Published
August 4th, 2020
Instrument
Notice
Legal weight
Non-binding
Stage
Final
Change scope
Minor

Who this affects

Applies to
Healthcare providers
Industry sector
6211 Healthcare Providers
Activity scope
Information sharing Data protection Healthcare delivery
Geographic scope
United Kingdom GB

Taxonomy

Primary area
Data Privacy
Operational domain
Compliance
Compliance frameworks
GDPR
Topics
Healthcare

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