EDPB 1/2026 on Research Data: Comment by June 25
Summary
The European Data Protection Board adopted Guidelines 1/2026 on the processing of personal data for scientific research purposes at its latest plenary session on April 24, 2026. The EDPB has opened a public consultation on the guidelines, inviting stakeholder feedback until June 25, 2026. The guidelines are currently available in English via the EDPB website, with a response form accessible through the EDPB's public consultations portal.
Research institutions and ethics committees should treat this consultation as a priority opportunity to shape how GDPR's research exemptions are interpreted across the EU. The final guidelines will affect secondary use of data, consent waivers, and safeguards for special categories — all common pain points in multi-country research projects. Submissions should address whether the guidance is workable for large-scale collaborative research involving multiple Member States.
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What changed
The EDPB has adopted new Guidelines 1/2026 specifically addressing the processing of personal data for scientific research purposes under the GDPR framework. This represents the EDPB's latest effort to provide harmonised interpretation on a complex area where Member State implementations have historically diverged. The guidelines are now open for public consultation, allowing data protection officers, research institutions, ethics committees, and other stakeholders to submit comments and feedback until June 25, 2026.
Research institutions, universities, hospitals, and any organisations conducting scientific research involving personal data should review the draft guidelines and prepare submissions. The final guidance will influence how GDPR Articles 89 and 9(2)(j) exemptions are applied to research contexts, including secondary use of data, consent requirements, and safeguards for sensitive categories. Early engagement with the consultation process allows organisations to flag practical concerns before the guidelines become final.
Archived snapshot
Apr 24, 2026GovPing captured this document from the original source. If the source has since changed or been removed, this is the text as it existed at that time.
Új EDPB-irányelv a személyes adatok tudományos kutatás céljából történő kezeléséről
Részletek Kategória: Hírek
Megjelent: 2026. április 24.
Az EDPB legutóbbi plenáris ülésén elfogadta a személyes adatok tudományos kutatás céljából történő kezelésére vonatkozó 1/2026. iránymutatást, amely a következő linkre kattintva érhető el, egyelőre angol nyelven:
https://www.edpb.europa.eu/system/files/2026-04/edpbguidelines202601scientificresearchen.pdf
Az iránymutatással kapcsolatban 2026. június 25-éig társadalmi konzultációt kezdeményezett az EDPB, az észrevételek benyújtására a következő linkre kattintva van lehetőség:
https://www.edpb.europa.eu/our-work-tools/documents/public-consultations/reply-form_en?node=9409
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